With a stronger sense of verbal articulation, I have taken the role of being Ved’s voice for this article. He began by narrating the events that his mother narrated to him growing up, which introduces the origin of his Autism, and his journey with it thereafter.

Ved was around the age of 2 on a ship somewhere in the Atlantic when his parents were approached by a crewmember regarding Ved’s apparent amiss behaviour. His mother dismissed this observation but it remained present in her subconscious. It was only later when she came across an article in a Reader’s Digest about autism, that she was able to join the dots.

On their return to India, Ved’s mother read anything and everything related to Autism. She then got Ved evaluated by an expert who diagnosed him with Asperger syndrome. Asperger is a developmental disorder on the Autism spectrum affecting the ability to effectively socialise and communicate. The first question that Ved’s mother asked the doctor was if her son would be able to share his life with a partner.

Ved’s parents did everything in their capacity in the hope to connect the dots of their discovery to form a straight line. Only to later be revealed that Ved was meant to be a square peg in the round holes the world has been designed in. Of course, Ved adds, he remembers none of this as it is a story his mother often narrates. So he picks up on those pieces that he can recall to tell me this.

Ved was about 11 or 12 years old when his parents decided it was time to have the “Autism chat” with him. To his relief, it clarified many things he found difficult to understand. Like why it took him more effort to comprehend schoolwork as compared to his peers, or why he struggled socially. Ved could finally conclude that he was not dumb, just Autistic.

As someone who could now identify himself in an “Atypical” bracket, Ved was enrolled in a typical school that attempted to have an inclusive approach. But instead, he was faced with a typical response from his teachers who assumed his shortcomings were due to a lack of effort on his part. The thing about Ved’s Autism was that it was so mild that he seemed ‘regular’ to his teachers, who often forgot the additional struggle he had to deal with. Hence, he failed, over and over, rewarded with red lines and cross marks on his books, rather than blue pen tones.

In time Ved saw the benefit in working with a special educator. She was able to narrow down that Ved’s inability to perform in school was not due to lack of understanding but instead lost in translation through poor handwriting when inscribed on paper. Together, they worked with the board to provide him with a writer for his Class X board exams. Ved still stands in shock and disbelief when he remembers the time his 10th-grade results were announced. For a boy who had failed in at least one subject in every test in every standard for 10 straight years, Ved had little faith in the system or even his own potential. 94% stared off the computer screen marksheet, and it is credit to a few in the system who discovered that he speaks better than he writes.

When it came to friends in school, Ved had close to none. Ved found that friends too had been typical – herding with the popular kids. An experience that Ved remembers distinctly was a school trip where the class clicked many pictures, but Ved was not in any of them. One night during that trip, he laid out 5 packets of Lays chips on his bed and took a photograph, the only picture he was able to take back to his family to tell them that these were his best friends.

Additionally, birthdays were painful for Ved too. Every year he hoped he would be invited by his friends. He found that he often envied his younger brother who was always going to parties. He would invite his entire class to his birthday parties, in the hope of being invited to theirs. When he was met with the disappointment of not receiving an invitation back, Ved felt terrible, and struggled to express himself. His sadness often found its outlet through anger and so he would tend to pick fights with others easily. Anger became his easy defence, and he still has to remind himself to separate it from the emotion he is experiencing.

Ved shared an interesting insight into education and how it is quite different from learning. A valuable experience he described was when in class 9 he was offered the opportunity to go to France with the Indo French hub in a student exchange program. This was an out of the school domain opportunity that Ved felt added greatly to his learning experience. He discovered that learning can happen in the midst of a new culture, cuisine, language, and the warmth and love of the host family he stayed with.

Scream
The scream, depending on his mood, Ved sometimes associates this prompt with a scream of frustration, or other times as an uninhibited expression.

Ved recalls a memorable learning experience which was with the Pomegranate Film Studio. He participated in a course on editing and direction. With these skills, he made a short film on the streets of Mumbai which got screened at G5A Mahalaxmi. When Ved was later invited for a panel discussion and featured in the DNA newspaper, he felt like the hero of his own film.

When it narrows down to Ved’s personal development with regards to his Autism, he worked extensively with Umeed (with their counsellors, psychologists and therapists). He gave a special mention to his special educator who would work with him, while also introducing him to visual art as a medium of expression. With this, he found his calling. Art is now Ved’s safe house and a good place to rest.

Ved’s mother once asked him if he would want to be referred to as an Autistic person, or someone who has Autism. After giving it thought, he decided that he is a person with Autism. It is part of who he is, but only a part. He recognised that he is so much more than his Autism. With time, he was able to find friends who see that too. He is also now the class representative in his junior college, a role embedded with social responsibilities that he takes extremely seriously.

 

When it comes to the lessons learnt on his journey with Autism, Ved acknowledges that there will always be challenges. He struggles with simple things that come naturally to others. For instance, as a child, he had to learn how to swing because of his inability to propel himself. He had to learn to manage his hyperactivity and impulsivity. He had to learn to control his excessive hand movements which people would find weird, or process his thoughts through acceptable social filters before he spoke. He had to learn to fit in so that the world would be comfortable around him. Something that may seem as minute and comprehensible for the rest of the world, was an experience Ved required extra effort to gain.

Ved is often marveled at for his unique ideas, and his innate ability to think out of the box. But interestingly, that kind of thinking process comes naturally to him. He wonders why people are even restricted to a box when there is so much space outside of it.

Finally, he concluded much to his mothers amusement that he did go out on a date, putting to rest her fear of him not being able to to share his life with a partner.

Loneliness in a crowd
Ved associates himself to the grey character and the colourful people around him are his peers. The ladder represents possibilities, opportunities guiding him out of the grey. But the words etched is what prevents him, words like anguish, anger, autism, fear, frustration, alone, no help.

Underwater Fantasy
This prompt triggered the rest of the class to draw fish and turtles and seashells and whales. Ved could not think of anything but Poseidon.

Ved Gangoly

Ved Gangoly

Story teller, Illustrator

Ved Gangoly is a class XII student studying Humanities in Mumbai. He is a Marvel fan and hopes one day to becoming a super hero for others like him with Asperger syndrome.  

Keya Gangoly

Keya Gangoly

Curator, Editor

13 Comments

  1. Ved Gangoly

    Thanks you so much ?? this is one of the best gifts I’ve ever recieved. you have portrayed me so beautifully I can read this a million times . Thank you once again for this wonderful gift. Lots of love take care and stay safe ?❤️- Ved

    Reply
  2. Purnima Mistry

    Keya, you have put forth Ved’s story so simply yet powerfully for all to read. While doing so you have given Ved centre stage as he is, almost like giving him a platform, continuing to keep yourself in the background.
    Highly commendable!!
    And thank you for bringing out Ved’s story. Like he says autism use only a part of him, there’s much more to him than just autism

    Reply
  3. Ved Gangoly

    Thank you so much for this lovely message ?❤️❤️ it means a lot to me you have portrayed me in an amazing way and I’m really grateful to have you as my sister. I can read this a million times thank you once again. Lots of love, take care and stay safe ?❤️- Ved

    Reply
  4. Pallavi Thomas

    Amazing, Superb, proud of you. I don’t know what else I can mention here, but Ved, you are a hero.

    Reply
  5. Arpit

    I am his college friend and I understand what type of things he has to suffer …. therefore I try to support him as much as I can ..

    Reply
  6. Tulika Patil

    This is heartening indeed! Ved is truly a hero and his mother an angel.

    Reply
  7. Pooja

    The story is quite sad ? and painful but as the time pass everything goes smoothly and I hope everything will be alright ?? in ved’s life

    Reply
  8. Pooja

    The story is quite sad ? and painful but as the time passes away everything will be alright
    Just never give up ??

    Reply
  9. Neil Pereira

    Wow! Such a beautifully written article on such a wonderful journey of discovery. Thanks to both of you for offering us a peek behind the curtains…

    Reply
    • Swati Patil

      Story so inspiring and eye opening

      Reply
  10. Nirmala Gangoly

    Wow, that was amazing! Ved, I feel so humbled and overwhelmed to see your courage to bare your soul and allow me to feel grateful to God for having blessed me with a grandson like you.
    And Keya, what can I say about your love for your brother! This decision to become a vehicle to express the inexpressible anguish that Ved has experienced, to share with us his life journey, to so beautifully explain his innermost feelings expressed in his paintings, to present to us his challenging but inspiring life in such a simple, lucid and empathetic manner, humbles me my sweetheart. Thank you for being a part of this, our blessed family! ❤

    Reply
  11. Indus Chadha

    It seems to me that Ved is already a super hero. And a talented artist too – I especially enjoyed the glimpses you have shared of Ved’s artwork and his reflections on each of the pieces. Thank you for sharing this story, Keya. Only when we lend our voices to more ‘atypical’ stories will we be able to overcome ‘the danger of a single story’!

    Reply
  12. Richa

    Such a strong, beautiful story – it is a necessity to bring these stories out for – as so rightly put by you- ‘people in a box’ – we need to be kinder, gentler and open to accepting a different world than ours. Hats off Ved! And trust me, you are way cooler than you think you are ?

    Reply

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